Westminster Health Forum

Next steps for end of life care in England - personalisation, inequalities and implementing the NHS Long Term Plan

Morning, Tuesday, 21st May 2019

Central London


This timely conference will be an opportunity to discuss next steps for end of life care in England - looking at personalisation, inequalities and priorities for implementing new policy initiatives.

Delegates will assess the priorities for moving forward with the NHS Long Term Plan for end of life and palliative care.

We expect discussion on the practicalities of implementation in areas such as supporting the personalisation of care - by working with patients, families, local authorities, hospices and the voluntary sector to improve communication - in the context of continuing the integration of services and developing the workforce.

It also takes place with plans to accelerate the roll-out of personal health budgets (PHBs) to people receiving specialist end of life care in 2019/20, following publication of the Universal Personalised Care: Implementing the Comprehensive Model. Attendees will consider the impact of PHBs on improving choice in end of life care - as well as key issues surrounding quality of care, support available to budget holders and the allocation of funding.

Further sessions will discuss the next steps for the palliative care workforce - including developing roles, addressing shortages and priorities for training and education. It comes as new training will be rolled-out to help staff identify and support relevant patients for personalised care planning in their last year of life.

The seminar will consider key issues for tackling inequalities in end of life care and improving access to palliative medicine.

It follows steps taken by NHS England to address inequalities by producing a set of resources aimed at promoting equity and best practice in end of life care for different groups of people - including gypsies and travellers, LGBT people and people experiencing homelessness, people in custody, people with dementia, and those with learning difficulties.

Attendees will examine the impact of NICE guidelines on ensuring the delivery of high quality care and access to individualised prescribing of palliative medicine - as well as progress on improving standards and quality in hospitals to support the reduction of clinical variation across England.

We expect discussion on improving children’s services - looking at developing clinical networks, facilitating choice for the place of care and priorities for the allocation of new funding for children’s palliative and end of life care announced within the NHS Long Term Plan.

Keynote Speaker

Professor Bee Wee

National Clinical Director, End of Life Care, NHS England


Baroness Finlay of Llandaff

Chair of Trustees, National Council for Palliative Care and Co-Chair, All-Party Parliamentary Group on Hospice and Palliative Care


Ellen Armistead

Deputy Chief Inspector of Hospitals, CQC

Jonathan Ellis

Director of Policy and Advocacy, Hospice UK

Dr Catherine Millington-Sanders

Macmillan GP and End of Life Care Clinical Lead, Kingston Clinical Commissioning Group; Clinical Lead, End of Life Care, South West London STP; Co-Founder and National Clinical Lead, Difficult Conversations and Marie Curie National End of Life Care Clinic

Professor Graeme Betts

Corporate Director, Adult Social Care, Birmingham City Council

Sarah Leach

Senior Manager, Personal Health Budgets, Personalised Care Group, NHS England

Dr Anna Karenia Anderson

Consultant in Paediatric Palliative Medicine, The Royal Marsden NHS Foundation Trust and Shooting Star Children's Hospices and Chair, Association for Paediatric Palliative Medicine