Westminster Health Forum

Improving dementia outcomes in England - research, personalised care and health and social care integration

Morning, Tuesday, 10th December 2019

Central London

THIS EVENT IS CPD CERTIFIED



This seminar will consider the way forward for improving dementia outcomes in England - looking at supporting research, personalised care, and integrating health and social care services.


It takes place in light of:



The agenda includes case study contributions from:


  • Professor Helen Rostill, Director, Innovation, Development and Therapies, Surrey and Borders Partnership NHS Foundation Trust and Professor, University of Surrey who will outline her work on the Technology Integrated Health Management for dementia project which explores how technology can be used to aid independent living;
  • Dr Elizabeth Gill, Clinical Chair, NHS High Weald Lewes Havens Clinical Commissioning Group, on the ‘Golden Ticket’ project which provides personalised care and social prescribing to patients with dementia and their carers; and
  • Dr Hilda Hayo, Chief Executive Officer and Chief Admiral Nurse, Dementia UK, on the role of Admiral Nurses in providing care in the community.

The agenda includes sessions on supporting dementia research and innovation in diagnosis and treatment.


It follows recent announcements of government investment for research into dementia - such as £79m towards early diagnosis for diseases including dementia through the Accelerating Detection of Disease programme and £133m for innovation in treatment and care, including exploring gene-based therapies for dementia.


Delegates will assess the priorities for dementia research, with discussion on increasing patient participation, translating research into clinical practice, and supporting collaboration across industry, the NHS, patient groups, and academia.


Further sessions will consider the wider challenges for research and innovation and what support can be provided to innovators, including streamlining the regulatory process and accelerating the uptake of innovations.


With the Dementia 2020 Challenge approaching its final year, we expect discussion to reflect the implications of issues identified in the progress review, which found:


  • Local variation in diagnosis rates and uptake of post-diagnostic support;
  • A lack of focus on recruiting those with dementia to take part in research; and
  • Challenges for improving quality of care - such as restricted funding, increasing demand for beds and nursing, and workforce shortages.

Delegates will consider how to maintain progress that has been identified - in areas such as diagnosis, community support, and NHS staff awareness - as well as areas where further progress is needed to meet the aims of the challenge, including addressing regional variations in quality of care.


The seminar also takes place in the context of the Challenge’s commitment to improve public understanding of the risk factors for dementia and the progress review’s findings that awareness of the link between dementia risk and lifestyle behaviours is low.


Attendees will consider the challenges for improving prevention, with discussion on engaging high-risk but under-reached groups - including BAME and non-English speaking communities - and making public messaging more accessible.


The agenda includes further sessions on the integration of services across health, housing, and social care, in light of aims of the Long Term Plan.


Following the commitment in the plan to roll out Integrated Care Systems across England by 2021, attendees will assess the challenges for scaling up to integrate services, with discussion on utilising shared funding, governance arrangements and ensuring the workforce has the right skills and resources.


Further sessions will consider the expansion of personalised care for dementia, and delegates will assess how to support shared decision-making and patient choice whilst addressing barriers to uptake, such as simplifying the personal health budget process, providing adequate funding, and increasing the availability of post-diagnostic support services.


Ahead of the expected publication of the Government’s green paper on social care, this seminar also provides an opportunity to assess options for the funding of social care and ensuring integration with health and housing services.



Keynote Speakers

Professor Alistair Burns

Professor of Old Age Psychiatry, University of Manchester and National Clinical Director for Dementia and Older Peoples’ Mental Health, NHS England

Elaine Rashbrook

Consultant Specialist, Life Course, Public Health England

Keynote Speakers

Professor Alistair Burns

Professor of Old Age Psychiatry, University of Manchester and National Clinical Director for Dementia and Older Peoples’ Mental Health, NHS England

Elaine Rashbrook

Consultant Specialist, Life Course, Public Health England

Chairs

Debbie Abrahams MP

Co-Chair, All-Party Parliamentary Group on Dementia

Baroness Greengross

Co-Chair, All-Party Parliamentary Group on Dementia

Speakers

Alison Murray

Head of Inspection, Adult Social Care, Care Quality Commission

Dr Hilda Hayo

Chief Executive Officer and Chief Admiral Nurse, Dementia UK

Dr Alison Evans

Head, Policy and Impact, Alzheimer’s Research UK

Dr Wendy Neil

Consultant Old Age Psychiatrist and Deputy Medical Director, Leeds and York Partnership NHS Foundation Trust

Dr Elizabeth Gill

Clinical Chair, NHS High Weald Lewes Havens Clinical Commissioning Group

Professor Martin Green

Chief Executive, Care England

Professor Dame Louise Robinson

Regius Professor of Ageing; Professor of Primary Care and Ageing and Director, Institute of Ageing, Newcastle University

Professor Helen Rostill

Director, Innovation, Development and Therapies, Surrey and Borders Partnership NHS Foundation Trust and Professor, University of Surrey

Peter Watson

Member, Carers Advisory Panel, Dementia Carers Count