Morning, Tuesday, 20th October 2020
***Full-scale policy conference taking place online***
This conference will examine the key issues for the use of data in healthcare and life sciences.
We expect discussion on how data is being used in the UKs response to COVID-19 and what can be learned going forward from developments in areas such as:
- the support given to research,
- how data is being used in identifying those at risk,
- enabling the effective planning of NHS services, and
- the development, trialling and rolling out of the NHS COVID-19 App for contact tracing as part of the response to the pandemic.
Further areas for discussion include:
- Improving the access of researchers and institutions to datasets and enhancing the UK’s science offer for research, data, and data-driven technology;
- Scaling up the UK’s genomic database and utilising data to modernise diagnostics and deliver precision treatment;
- Addressing safety and security concerns, and the priorities for improving public trust, engagement and allaying concerns over data collection and use;
- Training the workforce to ensure staff are equipped with the skills needed to utilise data effectively;
- Priorities for the use of data to improve patient care, improving health outcomes and supporting community care through the greater use of online and remote services; and
- Expectations for the National Centre of Expertise, due to be set up within NHSX shortly.
Developments that are relevant to the discussion:
- The Health Secretary reiterating the importance of data in improving care services - and the ambition that by the end of the decade doctors will have:
- all relevant patient data readily available to them;
- the tools needed to process that data; and
- the training to understand it.
- Goals set out in the NHS Long Term Plan to improve access to and the use of data;
- The National Data Strategy which sets out goals to be met by 2030, the final publication of which is expected later this year;
- Public Health England’s plan to utilise data to support more informed decision-making and produce better outcomes for the public; and
- Challenges identified in The Topol Review, and progress made towards goals set in the interim NHS people plan.
The discussion in detail:
Maximising the impact of life sciences research - looking at:
- the use of data to support research and the response to the pandemic;
- access, data sharing and investment in data-driven technology;
- implementation of the digital innovation hub and NHS DigiTrials, and their impact on improving patient care;
- improving access for researchers to multiple datasets; and
- next steps for utilising data produced through AI and other advances to modernise diagnostic services, and support research to improve diagnosis and deliver precision treatments.
Trust, regulation, standards and workforce training - looking at:
- addressing concerns over safety, security and the potential for harm related to data - as the Government prepares to roll out the NHS COVID-19 App;
- how to build trust in the use of data online, and ensure effective collaboration between regulators and government;
- secure management and sharing of genome data collected as part of the Accelerating Detection of Disease programme, with researchers from academia and industry;
- expectations for the National Centre of Expertise, being set up within NHSX to provide advice to NHS organisations on data agreements and contracts;
- data handling and how best to implement the updated NHS digital, data and technology standards framework, manage adherence, improve transparency and raise standards; and
- workforce education and training priorities to ensure staff are equipped with the analytical and technical skills needed to utilise data effectively.
Next steps for data use and meeting long-term goals
- The role of Life Sciences and data in improving patient care and outcomes - progress made since the industrial strategy and maximising impact into the future;
- Improving the collection and utilisation of data in healthcare - supporting rapid response, track, trace and test services, trust, access, training and regulation:
- Increasing availability and access to data as a resource in healthcare and how data is shaping services during the pandemic;
- Developing a system for data use that is trusted, and improving engagement from patients across the UK;
- Preparing the workforce with the specialised skills and techniques the need for utilising data; and
- Key legal and regulatory considerations for utilising data in healthcare - and implications for the COVID response
- The potential for innovation and genomics to improve diagnosis and treatment;
- The role of data in the COVID-19 Pandemic - contact tracing, resource management and improving patient care;
- Opportunities for improving patient care using data - health outcomes, identifying vulnerable and at risk groups, and in supporting online and remote services:
- Using data to innovate and improve the patient experience;
- Case study: The health data research hub for respiratory health;
- Data and medicine development - supporting personalised effective treatment; and
- Using data to enable integrated care and better connect health and social care and support the development of remote services.
- Next steps for policy and meeting long term goals.
Policy officials attending:
Our forums are known for attracting strong interest from policymakers and stakeholders.
This one looks no different. Places have been reserved by officials from the Department of Health and Social Care; the Office for Life Sciences and the Welsh Government.
This is a full-scale conference taking place online***
- full, four-hour programme including comfort breaks - you’ll also get a full recording to refer back to
- information-rich discussion involving key policymakers and stakeholders
- conference materials provided in advance, including speaker biographies
- speakers presenting via webcam, accompanied by slides if they wish, using the Cisco WebEx professional online conference platform (easy for delegates - we’ll provide full details)
- opportunities for live delegate questions and comments with all speakers
- a recording of the addresses, all slides cleared by speakers, and further materials, is made available to all delegates afterwards as a permanent record of the proceedings
- delegates are able to add their own written comments and articles following the conference, to be distributed to all attendees and more widely
- networking too - there will be opportunities for delegates to e-meet and interact - we’ll tell you how!
Full information and guidance on how to take part will be sent to delegates before the conference