Westminster Health Forum

Next steps for genomic medicine in the NHS - regulation, challenges for adoption and priorities for research

Morning, Tuesday, 20th November 2018

Central London

THIS EVENT IS CPD CERTIFIED



This seminar will be a timely opportunity to discuss the next steps for genomic medicine in the NHS - looking at key issues for regulation, challenges for adoption and priorities for research.


It will be an opportunity to consider the early indications from the new NHS Genomic Medicine Service as it becomes fully operational in October - as well as the priorities for evaluating the evidence and sharing learning from the 100,000 Genomes Project, with the Project aiming to have completed sequencing by the end of the year.


Planned sessions will look at the next steps for the NHS Genomic Medicine Centres as they aim to deliver the pledge of 90,000 samples of DNA from patients and family members with rare disease and cancer by September 2018.


Further sessions will examine the findings from the Commons Science and Technology Committee’s report Genomics and genome editing in the NHS - including concerns highlighting the need for investment in NHS digital infrastructure and training, along with capturing the commercial value of NHS datasets.


Delegates attending will focus on next steps for education and training, following the continuation of the Genomics Education Programme, which looks to embed genomics into relevant training courses as well as priorities for patients - looking at key issues for patient data and ensuring public trust and support.



Guest of Honour

Professor Dame Sue Hill

Chief Scientific Officer, NHS England

Guest of Honour

Professor Dame Sue Hill

Chief Scientific Officer, NHS England

Keynote Speakers

Sir John Chisholm

Executive Chair, Genomics England

Dr Anneke Seller

Scientific Director, Genomics Education Programme, Health Education England

Chairs

Baroness Neville-Jones

Vice Chair, All-Party Parliamentary Group for Rare, Genetic and Undiagnosed Conditions

Lord Willis

Vice Chair, All-Party Parliamentary Group for Medical Research

Speakers

Professor Nick Loman

Professor of Microbial Genomics and Bioinformatics, University of Birmingham

Senior speaker confirmed from Genetic Alliance UK

Dr Siddharth Banka

Clinical Senior Lecturer, The University of Manchester and Consultant Clinical Geneticist, Manchester University NHS Foundation Trust

Dr Alina Roser

GP, Primary Care Accelerator, Medical Genomics, Eastern Academic Health Science Network