Westminster Health Forum

Next steps for genomic medicine in the NHS - regulation, challenges for adoption and priorities for research

Morning, Tuesday, 20th November 2018

Central London

THIS EVENT IS CPD CERTIFIED



This seminar will be a timely opportunity to discuss the next steps for genomic medicine in the NHS - looking at key issues for regulation, challenges for adoption and priorities for research.


It will be an opportunity to consider the early indications from the new NHS Genomic Medicine Service as it becomes fully operational in October - as well as the next steps for NHS Genomic Medicine Centres (GMCs) as they aim to deliver the pledge of 90,000 samples of DNA from patients and family members with rare disease and cancer by September 2018.


Delegates will discuss the priorities for evaluating the evidence and sharing learning from the 100,000 Genomes Project - with the Project aiming to have completed sequencing by the end of the year - and assess the opportunities to advance other elements of personalised medicine by building upon the infrastructures established.


Planned sessions will examine the Government’s recent response to the Commons Science and Technology Committee’s report, Genomics and genome editing in the NHS, which addressed concerns around the need for investment in NHS digital infrastructure and training, along with capturing the commercial value of NHS datasets.


Attendees will assess the next steps for education and training, focusing on the progress of the Genomics Education Programme, which looks to embed genomics into relevant training courses. Delegates will also discuss priorities for patients, including key issues for patient data and ensuring public trust and support.



Guest of Honour

Professor Dame Sue Hill

Chief Scientific Officer, NHS England

Guest of Honour

Professor Dame Sue Hill

Chief Scientific Officer, NHS England

Keynote Speakers

Dr Krishna Prasad

Licensing Groups Manager & Expert Clinical Assessor, MHRA

Sir John Chisholm

Executive Chair, Genomics England

Dr Anneke Seller

Scientific Director, Genomics Education Programme, Health Education England

Chairs

Baroness Neville-Jones

Vice Chair, All-Party Parliamentary Group for Rare, Genetic and Undiagnosed Conditions

Lord Willis

Vice Chair, All-Party Parliamentary Group for Medical Research

Speakers

Karen Lightning-Jones

Head of Personalisation and Strategic Partnerships, Roche Products

Dr Sobia Raza

Head of Science, PHG Foundation

Professor Nick Loman

Professor of Microbial Genomics and Bioinformatics, University of Birmingham

Senior speaker confirmed from Genetic Alliance UK

Dr Siddharth Banka

Clinical Senior Lecturer, The University of Manchester and Consultant Clinical Geneticist, Manchester University NHS Foundation Trust

Professor Dian Donnai

Consultant Clinical Geneticist, Manchester Centre for Genomic Medicine, Manchester University NHS Foundation Trust and Professor of Medical Genetics, University of Manchester

Dr Alina Roser

Dr Alina Roser, General Practitioner and Honorary Clinical Lecturer, Queen Mary University of London